Sjogren's Mom

The Story Mother of Two Living with Sjogren's Syndrome

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Pre-Holiday Stress
'Tis the season...and for the first time in my life I'm not feeling much stress at the holidays. Thankfully. My wonderful husband taped over 100 photos into our holiday cards last weekend while I addressed envelopes and wrote in my personal message. Even...
Posted: Dec 19 2008, 01:16 PM by amop | with no comments
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All I Want For Christmas
Is a new back...or maybe just to be pain free. I tried describing the constant pain to my husband tonight, and I guess by saying, "I'm tired of being nauseous" it hit home. I just keep in mind it could be A LOT worse. I saw my rheumatologist this afternoon...
Posted: Dec 09 2008, 07:26 PM by amop | with no comments
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6 Weeks Post Delivery
I've made it to the final finish line in the birthing process - six weeks post delivery. For the first 2 weeks home, I had the no heavy lifting, no driving, and no more than once up and down the stairs a day rules. Add the no bath, swimming, or exercise...
Will I Find My Groove?
I have to wonder. To sum up the past several weeks...I'm tired. Very tired. Thankfully, my partner in crime really is my partner - my husband actually let me "sleep in" (aka, I just had the baby...who's nursing every hour) on Saturday morning while he...
First NST
At 37w2d I went in for my first non-stress test (NST). Of course, they couldn't do the testing in the office I usually visit, so I had to drive nearly an hour to their main office near the hospital for the appointment. On the way in, I dropped off my...
36weeks
I'm quickly approaching the finish line, but have NO ambitions of having things happen prior to July 30th. I am getting to the point where I am seriously wondering how, with so little energy and such an active 26 month old, I am going to be able to productively...
The Meltdown
Today was the Sunday that my family had to co-host coffee hour after church service. No, this wasn't something I signed up for, but part of the congregation's solution to having no volunteers for coffee hour hosts. They went down the list of families...
Posted: Jun 29 2008, 07:02 PM by amop | with no comments
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31w2d...Non-Stress Tests
I had another visit with my primary OB yesterday - everything still is going very well, baby is VERY active (can you step on my bladder and push up on my ribs all day long?), and the heart sounds great. The one question that did arise during my visit...
Sick Again
Well, it's a bit inevitable. Seems each time I take on a big project, I wind up getting sick just shortly afterwards. Like my body's response to making sure I get down time. Last time I was sick was after throwing my son's 2nd birthday party. This time...
Posted: Jun 03 2008, 08:28 AM by amop | with no comments
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Totally Unproductive
Do you ever have moments where you feel like you should just give up? Think I'm getting there. I'm behind on the housework (good thing, as our language therapist is coming tomorrow, so I'm sure tomorrow morning I'll be up and trying to pick things up...
Posted: May 15 2008, 07:27 PM by amop | with no comments
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Can I Really Be This Tired?
Well, it's been over a week since I put myself back on the every day dosage of Plaquenil...and now I'm not exhausted by mid-afternoon like I was before, but I'm out like a light before 930pm. I've fallen asleep on the couch with my husband working right...
Rheumatology Update
I saw my rheumatologist on Friday for another check-up. She hadn't received my bloodwork results yet...from what I understand the several thousand dollars worth of blood work I have done quarterly actually produces a packet of results about an inch thick...
My Rings Are Tight
I can't tell if I've reached that "swelling" stage in pregnancy or if it's the Sjogren's, but my rings are getting very tight. I did have to take my rings off towards the end of my first pregnancy...and who doesn't love being pregnant and having strangers...
Posted: Apr 14 2008, 06:07 AM by amop | with no comments
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Morning Sickness Returns
Yup, woke up this morning feeling sick to my stomache. Guess it's back for good. At least it's better than actually having to toss your cookies. Going to try and get some food in there, even though I'm not hungry, as it usually seems to help. Thinking...
The Cramps Continue
Things got even worse on Friday. Although I've been crampy on and off most of the past few weeks, by Friday afternoon I couldn't even get comfortable. I was just counting the minutes until my husband was home so he could watch our son run circles around...
Posted: Dec 23 2007, 05:50 AM by amop | with no comments
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