Sjogren's Mom

The Story Mother of Two Living with Sjogren's Syndrome

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6 Weeks Post Delivery
I've made it to the final finish line in the birthing process - six weeks post delivery. For the first 2 weeks home, I had the no heavy lifting, no driving, and no more than once up and down the stairs a day rules. Add the no bath, swimming, or exercise...
36weeks
I'm quickly approaching the finish line, but have NO ambitions of having things happen prior to July 30th. I am getting to the point where I am seriously wondering how, with so little energy and such an active 26 month old, I am going to be able to productively...
34w1d - Last High Risk Appointment
Well, although I've immensely enjoyed my experience with my high risk practice and the three OBs in the practice, it feels FANTASTIC to have made my last appointment and have a clean bill of health for myself and, most importantly, the baby. Today's appointment...
30 weeks
Nine weeks and counting... I had my latest appointment with my high risk group this afternoon - everything still looks great. The heart is ticking away like it should, and all the measurements show that baby and placenta are growing. My week-by-week book...
Weight Management
So I got my monthly call from BCBS's nurses to check in on my pregnancy. Up until this point I've thought that they've been polite and helpful, so I haven't minded answering their questions or returning their calls. Having worked in healthcare, I understand...
In The Clear
Yes, I officially received the "all clear" on the baby's heart at yesterday's appointment. What great news...and although it wasn't unexpected given the feedback we've been receiving, it was nice to finally have a definitive answer. There isn't any chance...
Nearing 26 Weeks
I had my monthly appointment (a week late...as I spaced and forgot last Monday that I had an appointment) yesterday. Loved only being up 3.5 lbs in five weeks. Holding better course than with my first pregnancy. Although, I had that wonderful stomach...
22w2d
I was asked today how far along I was, and for the first time in my pregnancy I wasn't exactly sure. I know during my first pregnancy that once I reached a certain point, my responses (like most other expectant Moms) were more generalized in terms of...
20w1d
We're slowly closing in on the 26th week mark. Just a few more appointments with the high risk group before we get the final nod that the little guy's heart is just fine. I had my next high risk appointment on Wednesday. Although I love the practice,...
14 Weeks
Although I'm not there gestationally, this is where I am from a LMP standpoint. Had another visit with my primary practice this morning, after waiting about 30 minutes for the doctor, the visit was all of 2 minutes. The baby's heartbeat is right around...
First Trimester Screening
Yesterday morning we headed into the hospital to have my first trimester screening. We didn't do this for our son, so the process was a bit new for us. We spent the first 30 minutes in a room with the ultrasound technician trying to get the baby to flip...
Being My Own Personal Advocate
With everything that's been going on the past few days I completely forgot about the call I received from my primary OB's office on Thursday afternoon. A very nice woman called to let me know that they had finally heard back from the high risk OB's office...
Should I Be Frustrated of Concerned?
In the mail today I received a copy of the letter the high risk OB sent to my primary OB back in August. After digesting the two pages and all of the medical terms and abbreviations (like CHB = congenital heart block...or fetal heart block)...and I have...
The First of Many
I had my first visit with my primary OB this afternoon. Definitely exciting, and as my husband, my son in his winter suit packed into his stroller like that kid from A Christmas Story, and I huddled in a room with the sterile table, a bunch of rolling...
What are my chances of having a baby with fetal heart block?
In that section about Sjogren's pregnancies and in the article I referenced in my earlier post it also mentioned that woman with Sjogren's who get pregnant and have both the anti-Ro and anti-La antibodies (which I have, and have high levels of) have a...
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